Lessons learned the first 50 years

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I hit a milestone. I turned 50 years old. I am thankful that I don't feel 50.   I am thankful for things God has taught me throughout those 50 years. .  I have learned that God loves mercy and when I feel a sense that justice needs to happen over mercy, all I need to do is remember that I am thankful for when God gives me mercy instead of a just punishment.   (Micah 6:8 8 He has shown you, O mortal, what is good. And what does the LORD require of you? To act justly and to love mercy and to walk humbly with your God.) ( Luke 6: 36  Be merciful, even as your Father is merciful. ) I have learned that hurt people end up hurting people.   When I am able to see that I didn't hurt them but I am bearing the results of that persons hurt inflicted by other people, it helps me forgive whatever hurt they pushed onto me and move on.  (Romans 12 : 18  If possible, so far as it depends on you, live peaceably with all. )  I have learned that anyone who thinks they have God
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NF clinic tomorrow...

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When my youngest son was 3 months old, I heard the word neurofibromatosis for the first time.  It wasn't until he was 3 years old that he was diagnosed with having it.   Now, he is  7 years old and we are dealing with a plexiform fibroma by his spine and a cyst inside his spinal cord. 

What is NF? Neurofibromatosis 1 (NF1) is the most common form of NF, affecting one in every 3,000 births. It is one of the most prevalent genetic disorders and the most common ofthe neurocutaneous disorders (conditions that affect both the skin and nervous system).  NF1 is characterized by pigmented spots on the skin (café-au-lait spots) and tumors that developon nerves anywhere in the body. In some cases, tumors can arise in the brain or on the spinal cord. The disorder also can cause non-tumorous complications such as learning disabilities – which affect up to 60% of all individuals with NF1 – as well as bone or skeletal abnormalities and certain cardiovascular defects. Neurofibromatosis encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves and, in addition, can affect the development of non-nervous tissues such as bones and skin. Neurofibromatosis causes tumors to grow anywhere on or in the body. Plexiform neurofibromas grow diffusely or as nodules under the skin surface or deeper in the body. They may be present from birth, but not initially be noticeable. Plexiform neurofibromaas can develop in any part of the body and tend to grow and intertwine with normal body tissues. They have approximately a 10% chance of becoming cancerous.  If you need more info on NF... click on this link- /NF1-Brochure.pdf
 
Tomorrow we go see the  NF1 specialist in Atlanta and I believe in all of the South East, Kim Uhas from the Scottish Rite Division of Medical Genetics. Astonishingly enough, she is not a doctor but a nurse practitioner. She is so much in demand that there is a 5 or 6 month waiting period in order to see her.  Please pray that we get a good report and that she is pleased with how John-Michael is doing.

Comments

  1. KathleenMarch 28, 2011 at 8:41 PM

    Will be praying, Rachel! I know the only way you have been able to get through this is because you have placed sweet John-Michael in His loving hands!

    ReplyDelete

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